I said that at some point I would write about the signs and blessings that God gave to us during our heartbreak over losing Hayden and this is that post. This is not going to be an easy post to write, nor do I think that it will be an easy post to read, but my heart tells me that it is important.
The evening that we received the phone call about Hayden we were sitting at the dinner table with our best friends, Lance and Paula Smith. I would consider this blessing number one, because Lance is not only one of our oldest and dearest friends, he is also our priest. The phone call was to tell me that an ambulance had been called to Hayden’s house and he was non-responsive. As I write those words I can feel my entire body flush and my throat tightens with the memory. My first question was to ask what hospital they were taking him to, only to be told that they were taking him anywhere yet because he didn’t have any vital signs.
I don’t know how to describe how I felt in that moment. I didn’t break down and cry. I know my first thought was not to run out the door and drive to his house because of course they would be on their way to the hospital by the time I got there. My second thought was I needed to do something and that something was get the horses in, specifically the mares and foals in from the field to the dry lot for the night.
As I walked out into the field I knew that Hayden had had another head injury. When you have a special needs child sometimes it feels like a gradual descent into heartbreak. From first learning of his blindness, then two years later his hearing loss. The moment you realize that he isn’t going to go to college or university or even go through school like the other kids.
When Hayden was five he started getting down on the floor and tapping his forehead on it. As he got older this behaviour started to increase in frequency and intensity – it was his way of seeking sensory feedback. We put him in a bicycle helmet and we had every agency you could possibly imagine involved trying to help him. We took our concerns to his pediatrician who was a specialist in special needs children and she told us that these kids just seem to know how hard they can hit their heads without hurting themselves.
We continued to keep Hayden in a helmet, but in February of 2010 the unthinkable happened. I was at soccer tryouts with Everett who was 7 at that time and Dave was home with baby Isaac and Hayden. He had put Hayden in his room to play and then put Isaac to bed – when he heard Hayden banging his head. He ran to stop him, only to find him having a seizure. He immediately called an ambulance and then my phone. Hayden had given himself a traumatic brain injury very similar to “shaken baby syndrome”. We spent two weeks in Detroit Children’s Hospital because part of his skull had to be removed to allow the swelling to go down.
The days when Hayden came home after his first TBI were some of the hardest of our lives. We couldn’t leave him alone for a single second because he would try to bang or hit his still healing head. Dave truly took the brunt of this because Isaac was still a baby. He would stay up nights holding Hayden (who also didn’t sleep) and then work during the day while Isaac was at daycare and I could take over. From this moment on, Hayden wore a helmet 24/7. After trying a variety of custom helmets we settled on a hockey helmet which is designed to prevent concussions and easily replaceable. He had a soft foam helmet for the nights. Still, we were at a complete loss to know how to help stop Hayden from constantly trying to hurt himself.
At this point in our journey we were very blessed to have the intervention of Helplink who got us into a specialized program in London run by CPRI (Child and Parent Resource Institute). They had an entire team of psychiatrists and psychologists and OT and PT. Surely, they would be able to help. I have two years of data sitting in my basement. They counted every single time Hayden hit himself and tried a variety of medications and treatments. Dave and I would drive up to London on Friday to pick up Hayden for the weekend and bring him back on Sunday. Almost two years later they had no solution, and Community Living Essex County generously opened up a weekend respite home during the week specifically for Hayden. It was two blocks from our house on the very same street.
The Community Living staff in those early days were amazing, but absolutely they were slightly terrified knowing Hayden’s past history and his drive to self injure. Unfortunately about 18 months into his stay he suffered another brain injury and was flown to London by air ambulance. We were very blessed that he emerged from this incident quickly and left the hospital later that day. From the moment Hayden moved into Community Living he had a concussion protocol that was signed off on by ourselves, his doctors and management staff. His initial house manager told me that he was one of the most complex individuals she had ever supported. He had an awake night staff and two staff during the day. When Hayden was smiling he would melt your heart and fill it with joy, but when he was unhappy it was incredibly difficult both on an emotional and physical level for everyone around him.
As the years went by, Hayden always had some type of behaviour that was concerning. His head banging came and went and was replaced at various times with other behaviours. I never really worried about the other behaviours, because deep down in my heart, I knew it was the head banging that would ultimately take him from us.
And so we come back to September 20, 2025. As I walked out into the field to collect the mares and foals, waiting for my phone to ring, to tell me that they had gotten him back and he was on his way to the hospital I knew in my heart what had happened. It took me weeks to realize that during this time God was working a miracle for us. Hayden’s injury was such that the pressure on his brain shut down his breathing. He was found with no pulse. I have not a single doubt in my mind that Hayden went to heaven that night, Jesus took him by the shoulders, looked him in the eye and told him he needed to go back for just a little while longer. He needed to go back so that his mama could have the chance to tell him that she loved him with every fibre of her being, that there was nothing she wouldn’t have done to fix the world for him. He needed to go back so that she could press him against her heart and sing all the songs that she sang to him as a baby as his heart beat slowed and he passed from her arms into God’s. I thank God every single day for the gift he gave us that night – To hold him in my arms one last time, kiss his sweet face, to be able to say goodbye to our beautiful Hayden.
When we arrived at the hospital, spoke to the ER doctor and realized what was going to happen, we called Lance and asked him to come in and give Hayden his last rights. As we sat around his bedside, David, Everett, myself and Lance, we talked about our cherished memories of Hayden, remembered the good times. At some point during this I felt a voice tell me that I needed to ask Lance about the Beatitudes. Initially I ignored it, unable to think why it would be applicable in this situation. But, I felt that voice again, telling me to ask about the Beatitudes. So, Lance opened his Bible and began to read:
““Blessed are the poor in spirit,
for theirs is the kingdom of heaven.
4 Blessed are those who mourn,
for they will be comforted.
5 Blessed are the meek,
for they will inherit the earth.
6 Blessed are those who hunger and thirst for righteousness,
for they will be filled.
7 Blessed are the merciful,
for they will be shown mercy.
8 Blessed are the pure in heart,
for they will see God.
I stopped Lance there, because I knew in my heart, the moment he read that verse, the message that God wanted to give me. Hayden was seeing God. Anyone who raises a child like Hayden knows what it means when I say he was absolutely pure in heart. God gave me a gift that night and I have held that phrase close in my grief. There aren’t many of us who are gifted the knowledge that yes, the one they love is truly in heaven with God.
Let us fast forward a couple of weeks, when I was struggling with my grief and wondering “what if heaven is just a fantasy and I’ll never see Hayden again?” I reached out in prayer asking for a sign, acknowledging that really is not how God works and it is unfair to even ask, but desperately seeking solace. While we are not a part of the Orthodox tradition, we did decide to lean into our grief at the loss of Hayden and we had multiple prayer services for him on the 3rd, 9th and 40th days following his death.
Another blessing, and proof of God’s perfect timing, came at the prayer service we held on the 9th day following Hayden’s death. This is a prayer service that is specifically “for the departed both in remembrance of the living and that the departed soul be counted worthy to be numbered among the choir of the saints, through the prayers and intercessions of the nine ranks of angels.” In 2025 this very day fell on Monday September 29th, in all the Feasts throughout the Church calendar year, this day for our Hayden was on the Feast of the Angels. A prayer for the angels, on a day honouring the angels. If ever God was putting up a neon sign this was it.
There were so many ways that God showed us his perfect plan and his care for us during this tragedy. The final one occurred at the final prayer service on October 30, the fortieth day following Hayden’s death. Prior to the Eurcharist Lance always invites all baptized Christians to partake in God’s Holy Communion or come up for a blessing – not this day. As Lance began the celebrate the Eucharist – he suddenly stopped, looked at me and said “when we celebrate communion, we do so with all of the company of Heaven.”
In all of his 30+ years of preaching Lance has never interrupted the Eucharist – but God used him that day to give me a message – to let me know that every time I take communion, I can do so knowing that Hayden is right there with me, celebrating the sacrifice and miracle of Jesus’ death and resurrection. Something we were not able to share in life, we now share in as a result of his death. That day sealed the truth in my heart. God could not have been more clear. He knew exactly what I needed to hear to put my heart as ease.
My grief over losing Hayden will be with me forever. It is something that I have had to put into a box in order to live my life. It is something that I can only bear to open a crack when I am feeling brave because I know it will overwhelm me. But, I also take comfort in knowing that God is with me, and that Hayden is with God, and there will be a day when I will hold him in my arms again and he will be perfect and whole as he was always meant to be.
As I come to the end of this post I share one other blessing that was given to me. So many of Hayden’s workers at Community Living adored him. It was not given to any of them to carry the burden of being on duty the night Hayden passed into God’s arms. For that I am eternally grateful.
I’ve opened my heart to you in this post and shared a very small glimpse of our life with Hayden and his death in the hopes that it helps you to find God in your life and in your times of grief and sorrow. The Bible is full of his promises and the love he has for us. I pray that you come to know the depth and fierceness of that love yourself one day.
God Bless,
Meredith




























